top of page
HOME
FEB-RARE-UARY
FAQ
ABOUT
TEAM
OUR WORK
THE GNE DIALOGUES
More...
Use tab to navigate through the menu items.
Donate Now
Profile
Join date: Jul 29, 2022
Posts
Jun 13, 2023
∙
22 min
Duchenne Muscular Dystrophy: How a self-taught dad is using state-of-the-art science to save his son
Ambrish and Nikita Kapadia Physician-scientists are perhaps some of the busiest people on the planet. With heavy clinical duties on top...
1232
6
11
Feb 26, 2023
∙
17 min
Spinal Muscular Atrophy : From being denied school admission to reaching the portals of IIT Kanpur
This is the story of how a family dodged the severely debilitating rare disease - Spinal Muscular Atrophy
839
1
13
Dec 1, 2022
∙
6 min
Rare Disease Research Insights : GNE Myopathy
A new cellular model of GNE Myopathy reveals disease mechanism and holds promise for testing potential therapies. Jason Doles & Team at...
1273
1
22
Load More
Sudha Bhattacharya
Writer
1
Followers
0
Following
Follow
Following icon
More actions
Profile
Members_Subpages_Horizontal_Menu
Use tab to navigate through the menu items.
bottom of page