top of page
HOME
FEB-RARE-UARY
FAQ
ABOUT
TEAM
OUR WORK
THE GNE DIALOGUES
More...
Use tab to navigate through the menu items.
Donate Now
Profile
Join date: Jul 29, 2022
Posts
Feb 26, 2023
∙
17 min
Spinal Muscular Atrophy : From being denied school admission to reaching the portals of IIT Kanpur
This is the story of how a family dodged the severely debilitating rare disease - Spinal Muscular Atrophy
793
1
8
Dec 1, 2022
∙
6 min
Rare Disease Research Insights : GNE Myopathy
A new cellular model of GNE Myopathy reveals disease mechanism and holds promise for testing potential therapies. Jason Doles & Team at...
1230
1
20
Oct 26, 2022
∙
8 min
A Parents Group saving the lives of infants born with Rare Metabolic Disease : Part 2
The story of Vikas and Poonam Bhatia. Sambhav Bhatia In Part 1 we saw how Vikas and Poonam lost their two babies Chahak and Lakshya to...
379
3
13
Load More
Sudha Bhattacharya
Writer
1
Followers
0
Following
Follow
Following icon
More actions
Profile
Members_Subpages_Horizontal_Menu
Use tab to navigate through the menu items.
bottom of page