Spinal Muscular Atrophy : From being denied school admission to reaching the portals of IIT Kanpur
This is the story of how a family dodged the severely debilitating rare disease - Spinal Muscular Atrophy
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The GNE Dialogues
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Sudha Bhattacharya
- Dec 1, 2022
- 6 min
Rare Disease Research Insights : GNE Myopathy
A new cellular model of GNE Myopathy reveals disease mechanism and holds promise for testing potential therapies. Jason Doles & Team at...
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Sudha Bhattacharya
- Oct 26, 2022
- 8 min
A Parents Group saving the lives of infants born with Rare Metabolic Disease : Part 2
The story of Vikas and Poonam Bhatia. Sambhav Bhatia In Part 1 we saw how Vikas and Poonam lost their two babies Chahak and Lakshya to...
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