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Sudha Bhattacharya
Sep 21, 202437 min read
Turning A Bedroom Into The Safest Home ICU
How two sisters mastered the technology of critical care to help their mother live with ALS. Darji was a profoundly devout man. His piety...
699 views9 comments


Sudha Bhattacharya
May 1, 202419 min read
A Dad Takes Under His Wings All ‘Silent Angels’ of Rett Syndrome
Arising from the Doom of 'No Diagnosis No Treatment', here is the story of how Samir Sethi persevered.
1,065 views0 comments


Sudha Bhattacharya
Jun 13, 202322 min read
Duchenne Muscular Dystrophy: How a self-taught dad is using state-of-the-art science to save his son
Ambrish and Nikita Kapadia Physician-scientists are perhaps some of the busiest people on the planet. With heavy clinical duties on top...
1,486 views7 comments


Sudha Bhattacharya
Feb 26, 202317 min read
Spinal Muscular Atrophy : From being denied school admission to reaching the portals of IIT Kanpur
This is the story of how a family dodged the severely debilitating rare disease - Spinal Muscular Atrophy
1,037 views1 comment


Sudha Bhattacharya
Dec 1, 20226 min read
Rare Disease Research Insights : GNE Myopathy
A new cellular model of GNE Myopathy reveals disease mechanism and holds promise for testing potential therapies. Jason Doles & Team at...
1,324 views1 comment


Sudha Bhattacharya
Oct 26, 20228 min read
A Parents Group saving the lives of infants born with Rare Metabolic Disease : Part 2
The story of Vikas and Poonam Bhatia. Sambhav Bhatia In Part 1 we saw how Vikas and Poonam lost their two babies Chahak and Lakshya to...
394 views3 comments


Sudha Bhattacharya
Oct 14, 20227 min read
A Parents Group saving the lives of infants born with Rare Metabolic Disease: Part 1
The story of Vikas and Poonam Bhatia. Vikas and Poonam Bhatia. Metabolic acidosis, arterial blood gas, pyruvate dehydrogenase…. words...
842 views3 comments


Sudha Bhattacharya
Sep 14, 20227 min read
How parents, who refused to accept defeat, pushed the frontiers of Rare Disease Research
The world doesn’t care when a disease is rare, while a parent doesn’t care, that the disease is rare . Over the ages, it’s parents who...
1,838 views12 comments
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